JAR of Hope, a foundation researching a cure for a fatal children’s disease called Duchenne Muscular Dystrophy, has just received good news. The U.S. Food and Drug Administration has approved an Investigational New Drug (IND) application to begin clinical trials of a compound called JAR914. Since September 2019, JAR of Hope has helped to fund this new IND, according to a press release.
“We are fighting to save the lives of children with a disease for which there is currently no cure,” said Jim Raffone, the CEO and founder of JAR of Hope. “This FDA approval will allow us to continue our efforts to find a cure with our ‘Operation: LifeLine’ initiative.”
Jim and Karen Raffone started JAR of Hope after their son, James Anthony, now 11, was diagnosed with Duchenne in 2013, according to the press release.
Some members of the scientific community believe JAR914 can possibly extend the lives of children who have Duchenne. JAR of Hope has permission to involve up to 12 children in the clinical studies, which will focus on the safety of the children and the efficacy of the compound, according to the press release.
About 20,000 children in the United States have Duchenne. Statistically, that means perhaps 500 to 600 children live in New Jersey and perhaps twice that number live in New York state, according to the press release.
The John Patrick University of Health and Applied Sciences (JPU), a nationally accredited university that offers AS, BS and MS degree programs in the radiological sciences, and integrative and functional medicine, has signed a transfer agreement with Brookdale Community College, Lincroft.
The relationship allows students to accomplish their educational and career goals with more affordable and easier access to bachelor’s and master’s degree programs, according to a press release. After graduating with an AS from Brookdale, students can effortlessly transfer to a bachelor’s degree program at JPU with access to regional sites across the country.
JPU hybrid degree programs take four semesters to complete (16 months), in which 14 of the 15 weeks are done online, while the other week is conducted at a regional site, according to the press release.
For more information, visit jpu.edu or brookdalecc.edu
The Jersey Shore Association for Human Resources (JSAHR) is hosting a half-day legal interactive Zoom seminar sponsored and presented by the employment law firm of Jackson Lewis that will cover COVID-19 related business issues that impact businesses, organizations and human resource professionals.
The seminar led by attorneys Luke Breslin, Richard Cino, Noorin Hamid and Amanda Miller will be held on April 8 from 8:45 a.m. to noon.
The presentation will include an update on COVID-19 related litigation in New Jersey; important provisions in the American Rescue Plan impacting employers; issues pertaining to COVID-19 vaccinations; discussion regarding proposed amendments to the New Jersey Law Against Discrimination; and more, according to a press release.
The registration fee of $20 for JSAHR members, $30 for non-members, and free for students and those in transition must be paid before April 7. Register at jsahr.shrm.org/events, email Christine Higgins at [email protected] or call JSAHR at 732-701-7155. Prepaid registrants will receive a Zoom link on April 7.
United Way of Monmouth and Ocean Counties’ 2021 Annual Tee-Off presented by Hackensack Meridian Health will be held on May 17 at Hollywood Golf Club, Deal. Registration opens at 11 a.m., with a shotgun start at 12:30 p.m.
This fundraiser will benefit the organization’s mission to bridge the gaps to education, financial stability and health for every person in the community, according to a press release.
In addition to becoming a sponsor, companies and individuals can support the event by donating silent auction items or purchasing raffle tickets for the chance to win a Hilton Grand Vacation Club week-long getaway, one-night stay at the Wave Resort in Long Branch, or a $500 Lowe’s gift card. Sponsorships start at $300 and raffle tickets are $25 each or five for $100.
More information is available at uwmoc.org/annual-tee-off