Tag: Duchenne Muscular Dystrophy
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JAR of Hope representatives planning to climb Mount Everest as fundraiser
Jim Raffone, the CEO and founder of the local charity JAR of Hope, is planning to climb Mount Everest with several friends in May to save children who have a very rare fatal disease. “Why Everest?” Raffone asked. “Well, charitable foundations have not held fundraising events because of COVID. So we have to find other…
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JAR Of Hope execs walking 300 miles to save dying children
To save children dying from an extremely rare, always fatal disease, three men representing the JAR Of Hope foundation are undertaking a walk they call “300 Miles Of Love.” Starting on July 10, JAR Of Hope Founder/CEO Jim Raffone, treasurer Joe Ippolito, and friend Martin Cintron will walk 300 miles across four states in seven-and-a-half…
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Inspired by JAR of Hope organization for children with Duchenne muscular dystrophy, Old Bridge Township Council supports online fundraising by charities
OLD BRIDGE – The Old Bridge Township Council passed a resolution calling on New Jersey to allow charities to use online raffles for fundraising. The resolution adopted on Dec. 17 addressed the crisis faced by local charities such as JAR Of Hope, which researches a cure for a very rare, always fatal childhood disease called Duchenne…
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JAR of Hope ‘Walk For Their Lives’ raises $165,000 for sick children
Officials from the JAR of Hope foundation have announced that the organization’s 260-mile “Walk For Their Lives” raised $165,000 to research a cure for Duchenne Muscular Dystrophy. Led by founder/CEO James Raffone, and including parents of children born with the extremely rare illness, the walkers started on Oct. 12 from Washington, D.C., and arrived in…
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Walk will help raise funds for research into deadly disease
Representatives of the JAR of Hope foundation will take a 260-mile “Walk For Their Lives” from Washington, D.C., to Old Bridge in October to raise awareness of the little-known, but fatal, childhood disease they are fighting. JAR of Hope was established in 2013 by James and Karen Raffone of Manalapan when their 4-year-old son Jamesy…
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JAR of Hope will raffle off iconic American sports car
JAR of Hope Foundation and All American Ford, Old Bridge, are raffling off a 2020 Mustang “Premium” convertible as a fundraiser for the foundation. The $41,865 sports car can be won by purchasing a $100 raffle ticket, according to a press release from the foundation. JAR of Hope raises funds to research a cure for…
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Kloos brothers ‘light up’ the life of Helmetta family
By VASHTI HARRIS Staff Writer HELMETTA — After months of hard work, hours of dedication and thousands of Christmas lights, the numbers are in: Bill and Ryan Kloos presented a check for $10,500 and a customized toy car to a young boy who is special to them. This past Christmas season, the Kloos brothers embarked…
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Chelsea residents hold pasta night to support 2-year-old
MONROE – The Chelsea at Forsgate assisted living residence recently held a “Pasta for a Purpose” fundraiser on behalf of Trent Powers, a two-year-old Helmetta boy suffering from Duchenne muscular dystrophy. Money raised totaled $2,135 in dinners and other contributions. On Dec. 15, a check was presented to Trent’s mom, Kimberly Powers, at the…
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Festive light show raising funds for boy, promoting awareness of disease
By VASHTI HARRIS Staff Writer EAST BRUNSWICK — Go big or go home was the game plan for Bill and Ryan Kloos this holiday season when it came to decorating their house. Known locally for their annual yuletide light show, this year the Kloos’ house at 13 Sterling Court in East Brunswick took on a…