Tag: JAR of Hope
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News Transcript News Briefs, Nov. 30
The Manalapan Police Department has reported the following incidents which recently occurred in the community: On Nov. 10 at 7 a.m., two Manalapan residents reported that unknown individuals smashed the windows of two vehicles that were parked at the Gordons Center shopping center, 285 Gordons Corner Road, and removed purses from the vehicles. The total…
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Monmouth County News Briefs, Aug. 17
New Jersey Department of Transportation (DOT) Commissioner Diane Gutierrez-Scaccetti and the Eastern Transportation Coalition are asking residents to participate in a Mileage-Based User Fee (MBUF) pilot program. Drivers who participate can earn $100 and will help policy makers explore potential alternatives to the fuel tax to maintain New Jersey’s roads and bridges, according to a…
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JAR of Hope representatives planning to climb Mount Everest as fundraiser
Jim Raffone, the CEO and founder of the local charity JAR of Hope, is planning to climb Mount Everest with several friends in May to save children who have a very rare fatal disease. “Why Everest?” Raffone asked. “Well, charitable foundations have not held fundraising events because of COVID. So we have to find other…
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$1M ‘Golf Ball Drop’ will benefit children dying of rare disease
JAR of Hope is staging an unusual event to save children who are dying from an unusual disease. And one lucky participant will win a fortune from the event. The foundation will stage a “$1,000,000 Golf Ball Drop” on Sept. 13 to raise funds to research a cure for Duchenne muscular dystrophy, according to a…
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JAR Of Hope execs walking 300 miles to save dying children
To save children dying from an extremely rare, always fatal disease, three men representing the JAR Of Hope foundation are undertaking a walk they call “300 Miles Of Love.” Starting on July 10, JAR Of Hope Founder/CEO Jim Raffone, treasurer Joe Ippolito, and friend Martin Cintron will walk 300 miles across four states in seven-and-a-half…
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JAR of Hope CEO will fight to save children’s lives on June 12
Jim Raffone, the founder/CEO of JAR of Hope, has been fighting for years to save children with a fatal disease called Duchenne Muscular Dystrophy. But on June 12, he will be fighting to save them in a totally different way – in a boxing ring. At the age of 50. Duchenne is an extremely rare…
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Monmouth County News Briefs, March 31
JAR of Hope, a foundation researching a cure for a fatal children’s disease called Duchenne Muscular Dystrophy, has just received good news. The U.S. Food and Drug Administration has approved an Investigational New Drug (IND) application to begin clinical trials of a compound called JAR914. Since September 2019, JAR of Hope has helped to fund…
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Inspired by JAR of Hope organization for children with Duchenne muscular dystrophy, Old Bridge Township Council supports online fundraising by charities
OLD BRIDGE – The Old Bridge Township Council passed a resolution calling on New Jersey to allow charities to use online raffles for fundraising. The resolution adopted on Dec. 17 addressed the crisis faced by local charities such as JAR Of Hope, which researches a cure for a very rare, always fatal childhood disease called Duchenne…
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JAR of Hope foundation brings sick youngster to United States for treatment
It’s not easy to get a little Irish boy with a fatal illness to the United States for medical treatment, especially during COVID-19. But JAR of Hope has done it. Alfie Pentony, 7, lives in Northern Ireland with his parents, Colleen and Jamie, and two brothers, according to a press release from JAR of Hope.…